At age twelve, I was a rising track and field athlete – until a Type 1 diabetes diagnosis changed everything. My coach, unsure and uninformed, pulled me from competitive training. I stopped all sports for years. Only much later, through the online diabetes community, did I find my way back. This is a story about missed chances, regained courage – and why we need tools that support not just people living with T1D, but their coaches too.
I was twelve when I received the diagnosis: Type 1 diabetes. Back in 1996, that meant finger pricks, handwritten logs, and a lot of uncertainty. Especially for the people around me – like my coach.
At the time, I trained in a competitive track and field squad. I was ambitious, determined, and full of dreams. But when my coach found out about my diagnosis, he said: "I’ve got no experience with this. I don’t want to do anything wrong."
And just like that, I was out of the group. I was moved to recreational training. It was a crushing experience – not just physically, but emotionally. Bit by bit, I lost motivation. Eventually, I stopped training altogether. For years, I did no sport at all.
What I lacked wasn’t just medical tools – it was information, support, and someone to tell me: You can still do this.
Years later, thanks to the online diabetes community, I slowly began to believe again. I read stories of others who trained, competed, and thrived despite their diabetes. I realized: It’s possible.
If only there had been an app back then – something to show my coach how to support me. With clear, accessible info and lived experiences. Maybe I would have stayed on track. Literally.
That’s why person-centered projects matter. When tools are developed not just for, but with us, they change lives. They give us back power, confidence, and possibilities.
So, here’s what I want to say: Don’t give up. Talk to your coaches. Share the knowledge that exists today. Use the tools. Find your community. And most of all: believe in yourself. It’s worth it. Truly.
How to communicate your needs and stay safe while training and competing
How to build confidence, emotional resilience, and a positive mindset after diagnosis
How to choose the right activity for your health, confidence, and glucose control
How to communicate your needs with confidence and build supportive relationships
How to prepare for a safe and personalised exercise plan